Tiina Urv
Editor in Chief, Therapeutic Advances in Rare Disease
Tiina Urv is the Editor in Chief of Therapeutic Advances in Rare Disease. She is a program director at the National Center for Advancing Translational Sciences (NCATS) at the National Institutes of Health (NIH). She manages the Rare Diseases Clinical Research Network (RDCRN), a multidisciplinary international program in the Division of Rare Disease Research Innovation (DRDRI). As the lead for the RDCRN program, Tiina collaborates with 10 NIH Institutes to provide oversight to20 multi-site consortia and a central Data Management Coordinating Center. The RDCRN has more than 176 participating sites in 12 countries and more than 160 Patient Advocacy Groups as research partners and conducts research on about 200 rare diseases.
Blogs from Tiina Urv
Launching a new open access journal – a challenging start but a bright future
Launched just before the pandemic, Therapeutic Advances in Rare Disease faced unprecedented challenges, yet the rare disease research community’s ingenuity kept progress alive.
Blog provider: Sage Perspectives
